Sunday, August 30, 2009

Indonesian Laryngectomee’s Association

Publication Number: P-1684
Presentation Date: June 16, 2009 Tuesday

Indonesian Laryngectomee’s Association


Nury Nusdwinuringtyas
Department of Physical Medicine & Rehabilitation, Faculty of Medicine, University of Indonesia, Cipto Mangunkusumo Hospital, Jakarta, Indonesia

OBJECTIVE: Laryngectomees are persons without vocal cord due to larynx cancer. Indonesian Laryngectomee’s Association (PWE) is a peer organization. It is a Non Government Organization (NGO) although professional like doctors and therapis also joint, to support and do professional things. Since 1992 Indonesian laryngectomee’s Association jointed Asian Federation Larynxectomee Association (AFLA) which was develop by Japan. Objective of this study was to evaluated the role of the supporting group

METHODS: Data of the peer group were analysed as follows:

Speech ability

1992-1996

1997- 2001

2002- 2006

Emited sound -

6 (9,2%)

9 (15,78%)

1 (2,3%)

Emitted sound +

8 (12,3%)

5 (8,77%)

3 (6,97%)

One or 2 words

3 (4,6%)

3 (5,26%)

4 (9,3%)

Esophageal speech

2 (3%)

11 (19,2%)

25 (58%)

electrolarynx

2 (3%)

4 (7,0%)

1 (2,3%)

Shunt

1 (1,7%)

1 (2,3%)

Not evaluated

44 (67,6%)

24 (42%)

10 (23.2%)

Number of person

65

57

43

Activity

2003

2004

2005

2006

2007

2008

activity

43

39

47

46

41

41

Attending members

14

18

17

33

29

34

man

13

17

17

33

29

34

woman

1

1

New member

7

4

7

16

7

7

Participation with AFLA

Indonesia

1992, 1994, 1996,1999, 2002,2007

Japan

1996, 2002, 2004

Training of trainer

Thailand

2004, 2006

RESULTS: The role of supporting group for esophageal speech is evidenced.
CONCLUSION: The peer group with contribution of physical medicine specialist, speech therapist, physical therapist, and others will enhance the success of esophageal speech in laryngectomees.

Keywords: Laryngectomees, cancer, AFLA, larynx, activity daily living, stoma, Jakarta, Indonesia

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