Indonesian Laryngectomee’s Association

Publication Number: P-1684
Presentation Date: June 16, 2009 Tuesday

Indonesian Laryngectomee’s Association

Nury Nusdwinuringtyas
Department of Physical Medicine & Rehabilitation, Faculty of Medicine, University of Indonesia, Cipto Mangunkusumo Hospital, Jakarta, Indonesia

OBJECTIVE: Laryngectomees are persons without vocal cord due to larynx cancer. Indonesian Laryngectomee’s Association (PWE) is a peer organization. It is a Non Government Organization (NGO) although professional like doctors and therapis also joint, to support and do professional things. Since 1992 Indonesian laryngectomee’s Association jointed Asian Federation Larynxectomee Association (AFLA) which was develop by Japan. Objective of this study was to evaluated the role of the supporting group

METHODS: Data of the peer group were analysed as follows:

Speech ability

	1992-1996	1997- 2001	2002- 2006
Emited sound -	6 (9,2%)	9 (15,78%)	1 (2,3%)
Emitted sound +	8 (12,3%)	5 (8,77%)	3 (6,97%)
One or 2 words	3 (4,6%)	3 (5,26%)	4 (9,3%)
Esophageal speech	2 (3%)	11 (19,2%)	25 (58%)
electrolarynx	2 (3%)	4 (7,0%)	1 (2,3%)
Shunt		1 (1,7%)	1 (2,3%)
Not evaluated	44 (67,6%)	24 (42%)	10 (23.2%)
Number of person	65	57	43

Activity

	2003	2004	2005	2006	2007	2008
activity	43	39	47	46	41	41
Attending members	14	18	17	33	29	34
man	13	17	17	33	29	34
woman	1	1
New member	7	4	7	16	7	7

Participation with AFLA

Indonesia	1992, 1994, 1996,1999, 2002,2007
Japan	1996, 2002, 2004	Training of trainer
Thailand	2004, 2006

RESULTS: The role of supporting group for esophageal speech is evidenced.
CONCLUSION: The peer group with contribution of physical medicine specialist, speech therapist, physical therapist, and others will enhance the success of esophageal speech in laryngectomees.

Keywords: Laryngectomees, cancer, AFLA, larynx, activity daily living, stoma, Jakarta, Indonesia