Friday, April 9, 2010

Aktivitas





Member of The Indonesian Laryngectomees’ Association 1997-2010


Year

Registered

Died

Passive

Active

Male

Female

1997

16

1

2

13

2

1998

7

1

0

7

1

1999

11

0

5

6

0

2000

8

1

1

8

0

2001

8

3

3

6

2

2002

9

1

1

8

1

2003

6

0

1

3

2

2004

4

0

0

4

0

2005

7

0

1

4

2

2006

16

0

2

12

2

2007

6

0

1

4

1

2008

7

0

1

2

4

2009

7

0

0

0

7

2010

(until Apr 7)

4

0

0

0

4

SUBTOTAL

117

6

18

77

28

TOTAL

123

123

Active Members and Their Level of Esophageal Speech Ability

Level of Esophageal Speech Ability

Number of active member(s)

Basic


Basic 1

5

Basic 2

7

Basic 3

2

Intermediate


Intermediate 1

1

Intermediate 2

1

Intermediate 3

4

Expert

6

Using device

2

TOTAL

28

Level of Esophageal Speech Ability Criteria:

Basic 1 : able to blow, able to produce burping sound intentionally

Basic 2 : able to make vowel sounds, able to talk in partial words

Basic 3 : able to pronounce word(s)

Intermediate 1: able to speak in sentence(s)

Intermediate 2: able to read texts

Intermediate 3: able to make a speech

Expert : able to sing a simple song, able to shout at the distance of ± 5 meters

Committee of The Indonesian Laryngectomees’ Association 2009-2011

(Elected on November 11, 2009)

Patron

Nury Nusdwinuringtyas,MD (Physiatrist)


Herlina (Speech therapist)

Advisor

Mr. Tobing

Chairperson

Mr. Edison

Vice Chairperson

Mr. Chairul

Secretary

Mr. Zainuddin

Treasurer

Mr. Eddy S.

Activities

January 27, 2010

August 30, 2009

July 4, 2009

February 4,2009

May, 2008

April 13, 2008

February 27, 2008

May 13, 2007

March 6, 2007

gathering

Jakarta, November 11, 2009

Visitors from Surabaya, Mr Fajrul doctoral candidate from Instut eTehnologi Surabay (ITS) , going to electrolaryng and meeting for New President

Jakarta, November 7, 2009

Poster presentation: “Rehabilitation Program for Laryngectomee’s Patient”

Turkey,June 16, 2009

Poster presentation: “Indonesian Laryngectomee’s Association”

Cipanas, February 21-22,2009

Gathering & evaluation

February 15, 2009

Presentation by member– International Program, Faculty of Medicine, University of Indonesia

October 19, 2008

Evaluation

September 16, 2007

November 11, 2009

Gathering – Election of New Committee

Tokyo 2002, Bangkok, 2003 & 2006

Training

November 1, 2008

Voice evaluation





Regular activities:

Club meeting : once a week

Training for new members: 2-3 times/week

Thursday, January 28, 2010

Rabuan - PWE


Berkumpul 27 Januari 2010


Tiga bulan sudah bisa bicara, hebat sekali!



Sisi kiri, ibu Helena , terapis wicara. Bersama pak Eddy

Sunday, August 30, 2009

Indonesian Laryngectomee’s Association

Publication Number: P-1684
Presentation Date: June 16, 2009 Tuesday

Indonesian Laryngectomee’s Association


Nury Nusdwinuringtyas
Department of Physical Medicine & Rehabilitation, Faculty of Medicine, University of Indonesia, Cipto Mangunkusumo Hospital, Jakarta, Indonesia

OBJECTIVE: Laryngectomees are persons without vocal cord due to larynx cancer. Indonesian Laryngectomee’s Association (PWE) is a peer organization. It is a Non Government Organization (NGO) although professional like doctors and therapis also joint, to support and do professional things. Since 1992 Indonesian laryngectomee’s Association jointed Asian Federation Larynxectomee Association (AFLA) which was develop by Japan. Objective of this study was to evaluated the role of the supporting group

METHODS: Data of the peer group were analysed as follows:

Speech ability

1992-1996

1997- 2001

2002- 2006

Emited sound -

6 (9,2%)

9 (15,78%)

1 (2,3%)

Emitted sound +

8 (12,3%)

5 (8,77%)

3 (6,97%)

One or 2 words

3 (4,6%)

3 (5,26%)

4 (9,3%)

Esophageal speech

2 (3%)

11 (19,2%)

25 (58%)

electrolarynx

2 (3%)

4 (7,0%)

1 (2,3%)

Shunt

1 (1,7%)

1 (2,3%)

Not evaluated

44 (67,6%)

24 (42%)

10 (23.2%)

Number of person

65

57

43

Activity

2003

2004

2005

2006

2007

2008

activity

43

39

47

46

41

41

Attending members

14

18

17

33

29

34

man

13

17

17

33

29

34

woman

1

1

New member

7

4

7

16

7

7

Participation with AFLA

Indonesia

1992, 1994, 1996,1999, 2002,2007

Japan

1996, 2002, 2004

Training of trainer

Thailand

2004, 2006

RESULTS: The role of supporting group for esophageal speech is evidenced.
CONCLUSION: The peer group with contribution of physical medicine specialist, speech therapist, physical therapist, and others will enhance the success of esophageal speech in laryngectomees.

Keywords: Laryngectomees, cancer, AFLA, larynx, activity daily living, stoma, Jakarta, Indonesia

Latihan