Publication Number: P-1684
Presentation Date: June 16, 2009 Tuesday
Indonesian Laryngectomee’s Association
Nury Nusdwinuringtyas
Department of Physical Medicine & Rehabilitation, Faculty of Medicine, University of Indonesia, Cipto Mangunkusumo Hospital, Jakarta, Indonesia
OBJECTIVE: Laryngectomees are persons without vocal cord due to larynx cancer. Indonesian Laryngectomee’s Association (PWE) is a peer organization. It is a Non Government Organization (NGO) although professional like doctors and therapis also joint, to support and do professional things. Since 1992 Indonesian laryngectomee’s Association jointed Asian Federation Larynxectomee Association (AFLA) which was develop by Japan. Objective of this study was to evaluated the role of the supporting group
METHODS: Data of the peer group were analysed as follows:
Speech ability
| | 1992-1996 | 1997- 2001 | 2002- 2006 |
| Emited sound - | 6 (9,2%) | 9 (15,78%) | 1 (2,3%) |
| Emitted sound + | 8 (12,3%) | 5 (8,77%) | 3 (6,97%) |
| One or 2 words | 3 (4,6%) | 3 (5,26%) | 4 (9,3%) |
| Esophageal speech | 2 (3%) | 11 (19,2%) | 25 (58%) |
| electrolarynx | 2 (3%) | 4 (7,0%) | 1 (2,3%) |
| Shunt | | 1 (1,7%) | 1 (2,3%) |
| Not evaluated | 44 (67,6%) | 24 (42%) | 10 (23.2%) |
| Number of person | 65 | 57 | 43 |
Activity
| | 2003 | 2004 | 2005 | 2006 | 2007 | 2008 |
| | ||||||
| activity | 43 | 39 | 47 | 46 | 41 | 41 |
| | ||||||
| | ||||||
| Attending members | 14 | 18 | 17 | 33 | 29 | 34 |
| man | 13 | 17 | 17 | 33 | 29 | 34 |
| woman | 1 | 1 | ||||
| New member | 7 | 4 | 7 | 16 | 7 | 7 |
Participation with AFLA
| Indonesia | 1992, 1994, 1996,1999, 2002,2007 | |
| Japan | 1996, 2002, 2004 | Training of trainer |
| Thailand | 2004, 2006 | |
RESULTS: The role of supporting group for esophageal speech is evidenced.
CONCLUSION: The peer group with contribution of physical medicine specialist, speech therapist, physical therapist, and others will enhance the success of esophageal speech in laryngectomees.
Keywords: Laryngectomees, cancer, AFLA, larynx, activity daily living, stoma, Jakarta, Indonesia
